Catalog Search Results
Author
Description
"When fifteen-year-old Harris moves with his family from California (home of beautiful-but-inaccessible beaches) to New Jersey (home of some much-hyped pizza and bagels), he's determined to be known as more than just the kid in the powered wheelchair. Armed with his favorite getting-to-know-you question ("What's your favorite color?"), he'll weed out the incompatible people--the greens and the purples, people who are too close to his own blue to make...
Author
Description
"With acerbic wit and a hilarious voice, Shane Burcaw's Laughing at My Nightmare describes the challenges he faces as a twenty-one-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a 'you-only-live-once' perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what...
Author
Pub. Date
2022.
Appears on list
Formats
Description
Drawing on a collection of original essays, previously published work, conversations, graphics, photos, commissioned art by disabled and Asian American artists, and more, Alice uses her unique talent to share an impressionistic scrapbook of her life as an Asian American disabled activist, community organizer, media maker, and dreamer. From her love of food and pop culture to her unwavering commitment to dismantling systemic ableism, Alice shares her...
Author
Publisher
Roaring Brook Press
Pub. Date
[2017]
Appears on list
Description
A picture book answering the questions young children ask Shane Burcaw about his wheelchair and life with Spinal Muscular Atrophy with equal parts optimism, humor, and empathy.
Why do you look so different? That's a great question! My name is Shane , and I was born with a disease that makes my body grow smaller and weaker as I get older instead of bigger and stronger. Living with this disease means that I've used a wheelchair for most of my life...
Author
Publisher
Skyhorse Pub
Pub. Date
c2012
Description
Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin's life happened to parallel the growth of the disability rights...
Author
Publisher
Roaring Brook Press
Pub. Date
[2019]
Description
"With his signature acerbic wit and hilarious voice, twenty-something author, blogger, and entrepreneur Shane Burcaw is back with an essay collection about living a full life in a body that many people perceive as a tragedy. From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions...
Series
NIH publication volume no. 12-4030
Publisher
Office of Communications and Public Liaison, National Institute of Neurological Disorders and Stroke, National Institutes of Health
Pub. Date
2012.
Series
Publisher
President's Council on Bioethics
Pub. Date
[2003]
Description
With an increased understanding of how many of the important genes in muscle cells function and are regulated, the parallel development of gene therapy techniques for efficient and controlled expression of genes is beginning to open up new possibilities for treating muscular dystrophies as well as maintaining "youthful" muscle size and strength during the aging process. This paper discusses the ends to which such increased understanding and power...
Author
Publisher
Worthy
Pub. Date
2020.
Description
Kevan Chandler and his friends decided to leave his wheelchair at the Atlanta airport, board a plane for France, and have his friends carry him around Europe to accomplish their dream to see the world together. Kevan and his beloved posse traveled to Paris, England, and Ireland where, in the climax of their adventure, they scale 600 feet up to the 1,400-year-old monastic fortress of Skellig Michael.
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